There are times I feel so alone with these diseases and conditions. It’s usually when I’ve been around “normal” people for too much time. They just don’t get me and I’ve ceased to try to make anyone understand. Sometimes I’m in a good space, sometimes not – but it is good to know I’m not the only one going through these issues. I can get too wrapped up in my symptoms, people tend to say things that don’t ring true for me. I’m searching for some good analogies that get me through the tough times. See if they ring any bells for you.
When the going get tough – the tough get going. Don’t shrug your shoulders at that. We are a tough lot. We have t be. Nobody can wave a wand and make the symptoms of our lives of our lives go away. Medical Science has a way to go. We suffer in silence or not, but WE are not the ones who have to go through this. All the platitudes “normies” give us will not sufficiently calm us when we are in a rough place. God bless them for trying, they just don’t understand what’s going on beneath our skin.
You can do it one step at a time. This is true. We can’t get out of bed and negotiate our days without moving exactly one step at a time. Nevertheless, when our insides are racing and we can’t think a rational thought, when all we see before us is struggle, racing thoughts, nightmares and silent screams, you might want to backtrack, not move forward. It is hard to bring ourselves to center. We can do it, but not without skills and understanding. And as much as we can, utilize the support people in our lives. These are the people who understand where we are coming from. Things will get better one step at a time.
You are the only one who can heal yourself. Sounds nice, doesn’t it? However, we know we need help . . . even when we can’t reach out and get it. I think it’s a phrase people say to absolve themselves of responsibility for ourselves. We want to be self-sufficient, that is where frustration builds. But sometimes we need outside intervention. And though we are the ones who have to do the work inside ourselves, sometimes we need direction. On the other hand, we are the conductors of the symphony of our thoughts, feelings, and actions that make up our lives.
Practice Joy. When I am in the midst of adversity, joy is just three letters with no meaning. I can struggle through the morass which can surround my life, but joy is something I rarely experience. BUT, when I do, I rejoice in it and don’t take it for granted. I don’t know how to practice it. There is an artificiality in the word Practice. I either wake up in a good place or I don’t. Restarting the day sometimes helps, like when I look out the window and feel sunlight caressing my face on an otherwise gloomy day, its heat tickling my skin. Joy is a blessing always to be appreciated.
Nevertheless, there is always HOPE. Nothing lasts forever. Another Platitude but one of Truth. We can put one foot in front of the other and each footstep gives us a new opportunity to step out of bad spaces and, at the very least, come to center. With help, spiritual guidance, and the support of those who understand, we can change our circumstances. One Day At A Time.