Tag Archives: life

Palliative Care

Hospice – Palliative Care
slowwww ddownnn
No routine
Eat however much
whenever mood strikes
even though mood is a misnomer

No more struggling
to make walk.
Showers out
sponge baths in bed in
Hospital beds
Wheelchairs
Pureed foods
Lifts if necessary

Trips are gone,
body too fragile
mind largely gone
pay attention to face –
grimaces? Stop, ease off
smiles, try more activity

For caregiver, its harder
if you have been with patient
a long time
two people needed
when one sufficed before
for moving patient from one place
to another or
simply to change clothes in bed
Taking are of person
is challenging – at best.
new, different skills are needed.

Putting away items
not needed anymore
in a few months time,
she will pass into great beyond.
Little time left –
starting goodbyes
in minute gestures,
tears filling heart,
sadness lining body cavities

A magnificent woman,
broke glass ceiling
in world of Finance
now beginning new work
breaking glass ceiling
to Heaven . . .

The Other Woman

Every night I pray for her.
In my mind’s eye
I so clearly see her.
My platitudes ill advised,
meaningless . . .

How can I justify our God’s plan?
Why should I be free of need
and she have anything but?

I know it’s stereotyping
but her swollen belly children
deserve an accounting.

Soon she will be gone –
disease stealing her strength away.
They will be orphans -alone –
under a tattered canopy,
thrust into begging to survive.

Just one more parent gone,
one more family destroyed
one more ten year old
parenting a large brood
under the blazing sun.

Why she – why me –
I who have nothing to give,
intimately knows every wrinkle
worn of care . . .

But I am here
babbling words to our Father
as she dies bit by bit
under the African sun
in a refugee camp
alone . . .

Beginnings

picture by Marty
Spring has announced its presence,
birds are pecking pungent soil,
sniffing air – content the remain
until the changing tides of autumn’s
gusty, chill bidden breezes.
Flowers are poking their heads
through moist, fragrant earth,
beginning to make their presence known,
butterflies begin unravelling cocoons.

All this is to let you know
the time has come
to vacate those dark corners
and seek light breezes
and cozy, sunny places
in the glistening morn.

For gloomy thoughts
and reluctant bodies have no place
in the glorious melodies of Spring.
So cast off those Winter chains
and break those bonds . . .
become as free as the winds.

A happy mind makes a happy worker
be she drone or queen.
And content people are more apt
to be productive, accepting of their lot
and enthusiastic regarding
their performance.

This is a general service announcement
for the disheartened, disgruntled,
disillusioned, discombobulated,
and thoroughly disheveled
Winter rung philistines.

Sunsets and Fireflies

Sunsets weave magic into my life. Whatever is going on, the beauty of a sunset gives me pause, lets me be caught up, if even for a moment, in the knowledge that the world is a thing of majesty, even if we insignificant people are managing to muck it up at an incredible rate. What will happen when we can’t see sunsets anymore, when the lights of the sky go dark, when brooks are too polluted to refresh yourself in them or even perhaps draw near them.

How far back have generations asked themselves if they should bring children into the world because of how bad the world has become? How many of us are scared, each and everyday, by the raging violence in the world and the rulers who seem to delight in making the lives of the underclass, the poor, and middle-class, the disabled and disease ridden people more miserable?

We are so blind to our impact on this planet. From the acts of kindness we do or do not, to the effect our acts have on the physical bodies of ourselves and others. I read how it was suspected a grandmother’s smoking caused autism in her grandchild. Yes, we all know smoking is bad for you but autism? We complain how bugs bother us but to go through life without seeing the dance of fireflies?

No matter how many years I have left, let me not forget sunsets and fireflies. I trudge so often in the sludge of life’s underpinnings. Give me a glowing sky.

Free Will

God granted us the Right of Free Will when Adam and Eve ate from the Tree of Knowledge. Yet, these days I find myself in a quagmire of thoughts about that act. Knowledge has led us far. We are not the Innocents we would have been without it. And yes, I am also a firm believer in Evolution. Justifying the two is an interesting balancing act on the scales, particularly the Scale of Justice.

When I pray these days, many times it is that God intervene and fill the hearts and souls of all aggressors with Loving Kindness so they could never imagine conducting acts of aggression again, and that those who have been persecuted not rise up in retribution should that happen.

But then I circle back to Free Will. Frankly, I think it has not helped us in many cases. We have only to look as far as ISIS and the treatment of Refugees. Of the girls raped and children turned into child soldiers. Or child brides. Or the Racism that pervades our society and the acts it generates. Of terrorism in all its facets. Or torture. The list goes on . . .

And then I look at the ramifications of not having Free Will. Would research for advances in science and medicine continue? What about the right of abortion and birth control? How would population control be handled? What about all the cultural distinctions of tribes, religions, and countries all over the world? Would the intricacies of our personalities cease to exist? What would happen to uniqueness? Would mental illness be eliminated? Would we all be committed to cherishing and protecting the environment and all beings – flora and fauna? Would Religions in all their varieties still exist or would there be a uniform one or none? Would atheists still believe as they do?

What would God’s will look like? And ultimately, would God choose to have both Good and Evil after all?

What’s the Answer?

I’m a Christian, no doubt about it.
Or, shall I say I believe in the Trinity
well . . . the Jesus rising to Heaven
sometimes rocks my boat.
He was definitely God inspired
although I wonder, as a child,
with brothers to contend with
how could he pass through this life
without Sin?

I can’t get through a day it seems
without a damaging thought flitting
through my mind . . .
As someone with Bipolar disease,
Depression and a life of poverty,
it’s hard to rise myself to the standards
set by God Almighty.

And I wonder, was the same God
who was so angry at the Jews
when they swerved from the path,
the same God of the New Testament
who says all I need to do is repent?

So many people in the World
have never heard of God as Christians
claim God – how can they be not saved?
Those who worship loving Gods
and live in kind and compassionate ways –
how can they not be saved?

How can all the people who are traumatized
by life – who are victims in war,
who suffer in all manner of pain,
who love their children and family
and respect with kindness their elders
and those who cross their paths
not be saved?

I am so very tired of the struggle
of men who rage against other religions.
Of those who act in violence and cruelty
against others who live by different principles.
We have been doing so since time immemorial
in the name of our religions and governments.

Wouldn’t it be wonderful if God –
for I have to believe that God sent many
messengers to nations around the World –
filled the Hearts of everyone,
particularly those who carry on Wars,
with Loving Kindness,
filled to the brim, bursting out their
arms and legs and minds . . .
so they could never again imagine
raising a weapon or hand against another?

Yes, Yes, free choice needs to be considered.
But I’d love to see what such a World
would look like, would have the chance to be.
Where saving the World and each other
became the most important principle
by which to live?
I wonder . . .

Choices

Meal time on Memory
distant faces staring into
nothingness . . .
The feeders patiently shoveling
pureed fish or green beans
whatever the chef sees fit to send.

I look about me  and wonder
where these souls are
and where they are going.
Sometimes you see glimpses
of who they were
when choices could be made
and the treatment of life
was theirs to own.

And then I wonder –
are they going to heaven
or hell?

Unanswered prayers

So often God,

I begged, pleaded, cried,-
for men, money, success, fame
wanting so desperately
to know my purpose here
why I had to live through pain
ongoing medical and emotional
traumas – I prayed.

Time’s passed.
Dreams of long ago
are shadow figures now
and though my days are long
and my nights are shared
not with a man I prayed for
but a cat’s purr
I live with irony and resolve.

Younger years were the prevail
of two men who tore me,
split me into pieces and spit me out
bruised, battered, alone.
There were others for a time, but
all showed the true measure
of their worth far too soon.

It’s taken this long for me
to come to terms with my
inadequacies and limitations
who I am, what this skin
and my sin
have designed for me
there was no room for
more distractions

So when crisis or change winds blow
I pray for his wishes
Oh, I let Him know how I feel,
what I think and want
but I shut up and listen
and even if I don’t hear
I par for his will to come to pass
and know I don’t know the answers
or what’s best for me
or why I have spent so
many years alone –

Whatever shall I write?

Deciding what to print is a tricky proposition.  What do others like?  And do I write to be read or to give voice to my feelings and thoughts?  What is honest writing?  I stumble along in my daily life, knowing I am living a far too simple one.  There is complexity and intensity in some ways but are they writable? A part of me wonders if I give voice to certain things will they be read by those who wish me ill?  And I hate how paranoid that makes me sound.  But I listen to the news and those people who say the government is sequestering everything for potential use, even by people who do no wrong. I’m a person who writes from the heart and is perhaps too self involved in my writing. I need to branch out more but am not sure my opinions matter in the grand scheme of things.  When I was writing love poems or ones about the ending of relationships, my ratings were high.  But I am long past that part of my life and believe there is still meaningfulness in what I write.  So I’m asking you, what is it you want to read?  What tickles your fancy?  What makes you sit up and wonder or imagine or conceive?  I’d truly like to know, especially if you have read my words in the past. Thanks.

Platitudes and Analogies

There are times I feel so alone with these diseases and conditions.  It’s usually when I’ve been around “normal” people for too much time.  They just don’t get me and I’ve ceased to try to make anyone understand.  Sometimes I’m in a good space, sometimes not – but it is good to know I’m not the only one going through these issues.  I can get too wrapped up in my symptoms, people  tend to say things that don’t ring true for me.  I’m searching for some good analogies that get me through the tough times. See if they ring any bells for you.

When the going get tough – the tough get going. Don’t shrug your shoulders at that.  We are a tough lot.  We have t be.  Nobody can wave a wand and make the symptoms of our lives of our lives go away.  Medical Science has a way to go.  We suffer in silence or not, but WE are not the ones who have to go through this.  All the platitudes “normies” give us will not sufficiently calm us when we are in a rough place.  God bless them for trying, they just don’t understand what’s going on beneath our skin.

You can do it one step at a time. This is true. We can’t get out of bed and negotiate our days without moving exactly one step at a time.  Nevertheless, when our insides are racing and we can’t think a rational thought, when all we see before us is struggle, racing thoughts, nightmares and silent screams, you might want to backtrack, not move forward.  It is hard to bring ourselves to center.  We can do it, but not without skills and understanding.  And as much as we can, utilize the support people in our lives.  These are the people who understand where we are coming from.  Things will get better one step at a time.

You are the only one who can heal yourself. Sounds nice, doesn’t it?  However, we know we need help . . . even when we can’t reach out and get it.  I think it’s a phrase people say to absolve themselves of responsibility for ourselves.  We want to be self-sufficient, that is where frustration builds.  But sometimes we need outside intervention.  And though we are the ones who have to do the work inside ourselves, sometimes we need direction.   On the other hand, we are the conductors of the symphony of our thoughts, feelings, and actions that make up our lives.

Practice Joy.  When I am in the midst of adversity, joy is just three letters with no meaning.  I can struggle through the morass which can surround my life, but joy is something I rarely experience.  BUT, when I do, I rejoice in it and don’t take it for granted.  I don’t know how to practice it.  There is an artificiality in the word Practice.  I either wake up in a good place or I don’t.  Restarting the day sometimes helps, like when I look out the window and feel sunlight caressing my face on an otherwise gloomy day, its heat tickling my skin. Joy is a blessing always to be appreciated.

Nevertheless, there is always HOPE.  Nothing lasts forever.  Another Platitude but one of Truth.  We can put one foot in front of the other and each footstep gives us a new opportunity to step out of bad spaces and, at the very least, come to center.  With help, spiritual guidance, and the support of those who understand, we can change our circumstances. One Day At A Time.